Annual Physical Health Checks for People with Severe Mental Illness

Do you work with or support someone who has a Severe Mental Illness (SMI)?

Did you know they are eligible for a free physical health check at their GP surgery every year?

People with a Severe Mental Illness (SMI) such as schizophrenia, bipolar or other psychoses, often experience poor physical health and undiagnosed/untreated physical health conditions because of the focus on their mental health.

People living with SMI have:

  • 6.6 times increased risk of respiratory disease
  • 6.5 times increased risk of liver disease
  • 4.1 times increased risk of cardiovascular disease
  • 2.3 times increased risk of cancer
  • are three times more likely to lose their natural teeth.

What is a physical health check?

An annual physical health check helps to identify any physical health problems early and ensure access to appropriate interventions.

A full check will include:

  • A blood pressure check
  • Height and weight / BMI
  • A blood sample to check the level of glucose (sugar) and level of cholesterol
  • Questions about whether they smoke and how much alcohol they drink
  • Questions about diet and exercise and any substance misuse.

Physical health checks will normally take place in the GP surgery or in the community mental health service and take 30-45 mins. If the check identifies any areas of concern, the patient will be given information and advice and may be referred on for an appropriate follow up intervention such as smoking cessation or a diabetes prevention programme.

Could you support someone to access their health check?

Many people living with SMI may be unaware they should be receiving an annual physical health check and why it is important. They may also be unaware  they are on an ‘SMI register’ and what this means. You can support someone to access their health check by asking them if they have attended a health check before, if they have received an invitation from the GP surgery, or by encouraging them to take up the offer, or support them to call the GP surgery for an appointment.

Further information

Physical Health checks for SMI is a national NHS programme – information can be found here.

A useful training video on the physical health of people with SMI has been produced by the South East Clinical Network and includes downloadable handouts for trainees – click here

Rethink have developed some useful patient information resources, including a downloadable patient leaflet and booklet for health checks, available here.

Monthly shout out: Allied Health Professionals leadership work

Our monthly shout out goes to Leanne Horsley from Sherwood Forest Hospitals Trust and Sally Knapp from Nottinghamshire Healthcare Trust for their system leadership work with Allied Health Professionals (AHPs). AHPs include physiotherapists, occupational therapists (OT), therapeutic radiographers, podiatrists, paramedics and other professions in health and care.

Leanne and Sally have worked strategically and collaboratively with a range of AHP leads to:

  • attract over £765,000 of investment through short term funding for specific projects
  • lead staff development opportunities across seven different AHP groups
  • grow practice placement capacity
  • support four different professional apprenticeships helping unregistered staff take up new roles as AHPs
  • lead the Nottinghamshire senior leadership team and OT system-wide integrated rotations with a suite of resources and blueprint for this to be replicated
  • develop a toolkit for OT services that will be used nationally to establish innovative and robust rotations for newly qualified occupational therapists that encompass health and social care organisations, across physical and mental health settings
  • produce and implement an AHP support worker development toolkit to help provide a full and accurate picture of the unregistered workforce, which is crucial for workforce deployment, planning and future staff development
  • create an AHP educators’ community of practice to increase clinical placements in the private, independent and voluntary organisation sector
  • the possibility of an AHP legacy mentor programme where experienced AHPs, usually in latter stages of their careers, provide coaching, mentoring and pastoral support to staff newly appointed into Health or social care

Suzanne Avington, Associate Director for AHPs at Nottinghamshire Healthcare Trust, said: “Leanne and Sally are forward thinking, proactive innovators. Their pursuits build on national AHP and health policy and direction which they continue to shape to the needs of the ICS. Their work and their approaches inherently reflect the three principles of the Integrated Care Strategy. They epitomise working across organisations, identifying, and acknowledging the diversity and unique offer of AHP workforce across health and social care to grow and develop a future generation of staff that are multiskilled and adaptable. With understanding and curiosity, they look to test how inclusive our offers are to educate and train staff in order to develop the capacity and capability of a diverse workforce that is reflective of the communities we serve.”

Nottingham and Nottinghamshire Smoking and Tobacco Alliance: April 2024 newsletter

Welcome to our newsletter for Spring! We’re hoping 2024 will be just as busy as 2023. In the first three months of this year, we’ve been working together towards our Alliance goal of eliminating smoking and tobacco-related harm and creating a smokefree generation for Nottingham and Nottinghamshire. This newsletter highlights some recent activities, such as the social media campaigns we ran during March to support No Smoking Day, and the plans we’ve made to use additional stop smoking resources.

Recently, the Tobacco and Vapes Bill was introduced before Parliament to help protect future generations from the harmful impacts of smoking. If passed, this legislation will ensure that children turning 15 this year (2024) or younger will never be legally sold cigarettes or other tobacco products, even after they turn 18. This is a significant move towards creating a smokefree generation and the debates in parliament will offer extra opportunities to raise awareness of the harms of tobacco and promote our stop smoking services locally.

It is an exciting time for us to be working together and collectively aiming to reduce smoking rates in Nottingham and Nottinghamshire. Thanks once again for your support and input, which is very much appreciated.

Nottingham and Nottinghamshire Smoking and Tobacco Alliance: April 2024 newsletter

The Alliance has a clear, shared ambition to see smoking amongst adults reduced to 5% or lower by 2035 across Nottinghamshire and Nottingham City.
Further to this, we want to make the harms of smoking a thing of the past for our next generation such that all of those born in 2022 are still non-smokers by their 18th birthday in 2040.

In this newsletter:

  1. Programme Updates
  2. New Integrated Wellbeing Service in the city
  3. New promotional resources aimed at preventing smoking and vaping among young people
  4. Real Stories
  5. Partner Spotlight
  6. Upcoming plans and events

Programme Updates

Through our work as an Alliance, we continue to raise the profile of stop smoking services, available support and organisations that work hard to tackle the harms of tobacco.  Our goal is to have conversations about why people smoke in the city and county, how people feel about smoking in their communities and how we can support people to quit.

Our social media channels were launched in October 2023. Since then, across all four platforms – Twitter, LinkedIn, Facebook and Instagram – we have had at least 1107 interactions with our posts and now have more than 115 followers.

If you haven’t yet followed our social accounts, the links are below – feel free to share and like our posts! The more people who follow and interact with us, the more the accounts will be shown to others on the platforms, so your support really helps to get the message out.

Twitter: https://twitter.com/smokefreenn

LinkedIn: https://www.linkedin.com/company/97399935/admin/feed/posts/

Facebook: https://www.facebook.com/smokefreefuturesnn/

Instagram: https://www.instagram.com/smokefreefuturesnn/

National No Smoking Day – 13th March and our March social media campaign: Reflecting on 40 years of tobacco control

No Smoking Day 2024 marked the 40th anniversary of No Smoking Day in England. For the whole of March, the Alliance used this opportunity to reflect on the last 4 decades of tobacco control in our social media channels. A summary is shown below:

As part of the month’s campaign, we published this video of local public health expert and former tobacco control advisor Liz Pierce reflecting on her work when stop smoking services were first set up back in 2000 – No Smoking Day (youtube.com).

As well as signposting readers to support available, both nationally through the NHS and locally through our community stop smoking services, we also highlighted the importance of smokefree spaces in supporting people who are trying to give up smoking, encouraged reporting of illegal and underage tobacco sales, and promoted signing the tobacco declaration to local organisations.

Department of Health and Social Care (DHSC) grant funding for smoking cessation

The Government is introducing changes to create the first ever Smokefree Generation. The proposed changes will protect future generations from starting smoking, and effectively phase out smoking for good.

Legislation has been proposed so that children turning 15 this year (2024) or younger will never be legally sold cigarettes or other tobacco products, even after they turn 18.

The changes also include additional support for smokers who are trying to quit, and measures to reduce the appeal of vapes to children and young people.

To support existing smokers to quit, the government is more than doubling the budget for stop smoking services, investing an additional £70 million per year (to a total of £138 million), aiming to support around 360,000 people to quit each year.

Both city and county are receiving extra funding of £545,215 and £1,039,463 respectively per annum for the next 5 years. We aim to use this funding to help more people stop smoking, by:                                                                                                                

  • increasing promotion of services to raise awareness of stop smoking services
  • stimulating more quit attempts by providing more smokers with advice and swift support linking smokers to the most effective interventions to quit
  • boosting existing behavioural support schemes designed to encourage smokers to quit
  • expanding support for target groups / areas, focusing on where there are high levels of smoking
  • building capacity in local areas to respond to increased demand 
  • strengthening partnerships in local healthcare systems.

We will keep you updated as the implementation of the funding starts.

New Integrated Wellbeing Service in the city

Thriving Nottingham is now live in Nottingham city. A new, free health and wellbeing service, funded by Nottingham City Council and developed by Thrive Tribe, is now here to revolutionize health support for residents in Nottingham.

🔗 Streamlined support. Simplifying access for residents, the service consolidates diverse health and wellbeing provisions into one central platform.

💪 Diverse offerings (in-person and virtual provision). Supporting adults, children and families with weight management using programmes by gloji, MAN v FAT and Slimming World, as well as offering support with smoking cessation, community-based physical activity options and personalised 1-to-1 health coaching.

Lucy Hubber, Director of Public Health at Nottingham City Council, said:

“People in Nottingham have poorer health outcomes than in other similar areas. We are therefore thrilled to partner with Thrive Tribe to bring to life our vision of a new health and wellbeing offer for Nottingham residents from April 2024. The new service, Thriving Nottingham, will consider the physical, mental, social, and emotional aspects of health and wellbeing. This service will help meet the diverse needs of our communities and recognise that health behaviours are complex and rarely occur in isolation. 

We look forward to working with Thrive Tribe to ensure Thriving Nottingham becomes a trusted and well-used service for all of our communities and a service that improves the lives of all of Nottingham City residents
.”

To know more, please visit – Thriving Nottingham | Helping you to live well and feel great

New promotional resources – preventing vaping and smoking among children and young people

We’ve created some posters to encourage reporting of underage sales – for both tobacco products and vapes. Restricting underage sales helps to prevent vaping and smoking by young people, as it reduces their access to the products. These posters are intended to encourage adults to report to Trading Standards when they become aware of places selling vapes and/ or tobacco products to people who are under 18. The vaping poster also includes some information on how to recognise unregulated vapes when you see them for sale.

As the posters are promoting reporting by adults, they are intended for use in staff or office areas, rather than areas primarily used by young people.

If you’d like copies of these posters for display in your premises, to encourage reporting by your staff, please contact Swathi swathi.krishnan@nottinghamcity.gov.uk or Kay kay.massingham@nottscc.gov.uk.

Real Stories

Here is a patient quit story from Nottinghamshire Healthcare Trust:

Referred to the service in November 2023, the patient had been smoking since the age of 16 with a consumption rate of 20 cigarettes per day. Previous attempts with nicotine replacement therapies (NRTs), particularly patches had left her dissatisfied and expressed to try e-cigarettes in order to gradually reduce the number of cigarettes.

By January 2024, the cigarette consumption reduced to 6 cigarettes daily and was down to only 1-2 cigarettes a day by the end of the month. In February she successfully quit smoking altogether, including vaping.

Patient feedback admitted that the process of quitting had been more challenging that anticipated but helped her mental health significantly.

This shows the importance of harm reduction and the benefits of quitting the habit.

If you have any other case studies, feel free to drop us a line at swathi.krishnan@nottinghamcity.gov.uk and kay.massingham@nottscc.gov.uk.

Partner Spotlight: Quarrydale Academy’s smoking prevention work with 11–15-year-olds

Secondary schools in Nottingham and Nottinghamshire can access INTENT, a free, evidence-based smoking and vaping prevention programme aimed at 11–15-year-olds who have never smoked. Designed to be delivered by teachers as part of the PSHE curriculum, the content includes interactive, age-appropriate activities providing information on tobacco, vaping, and reasons not to smoke or vape, followed by creation of unique “Personal Plans” about how to refuse offers of cigarettes or vapes.

The Quarrydale Academy in Sutton in Ashfield, Nottinghamshire, has provided some feedback on the Intent programme.

A Year 7 student said: “I felt that the information given and how it was given was very good.  It wasn’t just about learning, but also ways in which the knowledge, information and strategies could be used in other areas of life”.

One of the Quarrydale teachers that delivered INTENT said: “The resources were easy to use and the information that was to be shared was clear and well explained.  This gave me confidence to deliver the sessions and they were organised in a way that staff and students found interesting – Staff and students got a lot from this, and it also helped develop relationships further”. 

Steven Cooper, Assistant Head Teacher and Designated Safeguarding Lead at Quarrydale said: “Intent was organised and explained very well initially by the team, support for the website and use of resources was excellent and contact and communication to support the use of this in school has been great, and available at any point”. 

Find out more about the Intent programme at INTENT | smoking prevention programme | Evidence to Impact.

Upcoming plans and events

Going forward we’ll continue to spread the importance of quitting and signposting Nottingham and Nottinghamshire residents to the right support. We’ll also continue to educate people on the harms of tobacco.

We want to shine a light on our partners’ efforts to reduce smoking in our area. If you’re planning any campaigns or activities focused on tobacco, please get in touch.

We’ve been focusing on several key issues, including illegal tobacco (and the need to stamp it out), underage sales, and the benefits of creating smokefree spaces. Feel free to get in touch if you have any ideas for future activities around any of these issues.

For our work on smokefree spaces and policy, we will shortly be consulting partners on their current activities and setting up a Delivery Group to take forward work on this theme – as we already have in place for the other Alliance themes. If your organisation would be interested to participate, please contact – swathi.krishnan@nottinghamcity.gov.uk and kay.massingham@nottscc.gov.uk.

Evaluation of SFHT Maternity tobacco treatment financial incentive scheme

Findings from an evaluation of a pilot service at Sherwood Forest Hospital Trust (SFHT) which utilised financial incentives to help pregnant people quit smoking have been published in the European Journal of Marketing. The evaluation conducted by Nottingham Business School included quantitative and qualitative analysis.

Between 2022-23 Sherwood Forest Hospital Trust took part in a pilot programme, initially funded by the Local Maternity and Neonatal System (LMNS), which offered up to £400 in shopping vouchers for people who quit smoking during pregnancy. Expectant partners were also included within the programme.

The opt out programme used the in-house specialist maternity team, “The Phoenix Team” to lead the pilot in addition to the NHS LTP maternity tobacco treatment service. The programme utilised NICE Guidance in relation to helping pregnant people stop smoking and the use of incentives. The team also provided emotional support and nicotine replacement therapies to aid people to quit smoking. The number of people who set quit dates during the pilot period doubled.

On the pilot commencement, 18% of pregnant people were classed as smokers at the time of delivery in SFHT, one of the highest rates in England. Smoking is the leading modifiable risk factor for poor pregnancy outcomes and disproportionately affects those who are more socio-economically deprived. Around 79% of those identified as smokers in the pilot were also from the 40% most socio-economically deprived areas.

Results from the programme have shown:

  • 88% of participants were smoke-free at birth
  • 83% of participants were still smoke-free 6 weeks postnatal
  • 18% of homes became entirely smoke-free (82% still had others in the home who smoked)

The most recent data available to the ICS indicates the current smoking at time of delivery at SFHT is now 12.9%, a decline of 6 percentage points – just one percentage point reduction in the smoking rate equates to an annual saving to the Trust of around £100,000.

The study found the combination of support offered via the programme to be effective and highlights the efficacy of an incentive scheme, complemented with support from clinicians and the significance of knowledge exchange and collaboration between stakeholders in healthcare. The publication helps to highlight the academic progress being undertaken across the ICS.

The full journal can be viewed here:

Evaluating the impact of an incentive scheme to encourage pregnant people to set a quit-smoking date | Emerald Insight

If you are unable to access a the full version via the above link you can request a copy through your organisation’s library and information service. ICB Colleagues can email nnicb-nn.healthinequalities@nhs.net for a copy.

For further queries contact nnicb-nn.healthinequalities@nhs.net

Celebrating Changing Futures Nottingham

Last year, we were invited to celebrate the incredible work of Changing Futures Nottingham with partners across the Nottingham healthcare network.

Changing Futures Nottingham is a partnership working towards sustainable improvements in supporting people facing Severe and Multiple Disadvantage (SMD) in our city. Their work is invaluable in improving health outcomes for those facing a range of issues including homelessness, substance abuse problems, and mental health issues.

We were honoured to be invited along, with PBP Clinical Director Husein Mawji in attendance. Take a look at this video from the event to learn more about Changing Futures Nottingham and their work.

Monthly shout out to – the Smokefree Team at Nottinghamshire Healthcare NHS Foundation Trust

Congratulations to the Smokefree Team at Nottinghamshire Healthcare NHS Foundation Trust, who have been awarded the ICS monthly shout-out for their work to support patients with mental illness to stop smoking.

The work of the team includes:

  • Setting up a smokefree service within inpatient mental health units, utilising a holistic, person centred approach to smoking cessation and harm reduction. 
  • Designing and facilitating the use of bespoke, educational resources and materials to aid distraction techniques to manage nicotine withdrawal. These have been produced in an easy-read format and other languages and also flash cards for non-verbal patients. The packs have been shared with other mental health trusts nationally.
  • Delivering bespoke training sessions to patients, directly on the ward, educating on different types of Nicotine Replacement Therapy, alongside the benefits of a harm reduction approach for patients who are not ready to quit smoking. 
  • Designing and delivering speciality training modules to 2500 staff working in patient facing areas such as coffee bars and receptionists in GP surgeries.
  • Delivering a suite of support and training within the Specialist Services directorate, including Child And Adolescent Mental Health, Mother and Baby and also within the prison service.

The team is an example of best practice nationally and it supports other mental health trusts with the implementation and facilitation of smokefree services, including the writing of their smokefree and vaping policies and procedures.  

System Analytics Intelligence Unit podcast

The System Analytics Intelligence Unit (SAIU) was set up on 4 July 2022.  This followed the COVID pandemic, where as a system we identified the huge value and benefit of integrated working with our systems data/intelligence and analytical partners to better identify and support the health and care of our population. 

In our latest ICS podcast, Dr Kathy McLean (Chair of the Integrated Care Board) chats to Maria Principe (Director of Clinical Transformation and Effectiveness, ICB), Sergio Pappalettera (Contract and Information Manager, ICB), Stephen Wormall (GP lead for health inequalities mid Notts, ICB) and Chris Packham (Associate Medical Director at Nottinghamshire Healthcare Trust) about how the SAIU is offering a more granular and detailed understanding of what’s happening in and across our system.

Introducing South Notts PBP Convenor Paddy Tipping

Reflecting our commitment to partnership working and relationship building across South Nottinghamshire, we’re delighted to welcome Paddy Tipping to the South Nottinghamshire Place-Based Partnership leadership team.

Paddy took over as our Partnership’s Convenor in Autumn 2023 from Nottinghamshire Healthcare Chair, Paul Devlin. As an ex-MP and councillor, Paddy has a wealth of experience across the public sector in Nottinghamshire, with particular skills in building relationships and making change happen. He also has relationships across the patch, joking: “My grandkids take the mickey and say I’ve got a big Christmas list! But we are who we are.”

Paddy was MP for Sherwood from 1992 until 2010 and held roles such as Parliamentary Secretary for the Privy Council Office and Deputy Leader of the House of Commons under Tony Blair. He became Nottinghamshire Police and Crime Commissioner in 2012, holding the role until 2021, and is committed to public life, currently working a Board member at Nottinghamshire Healthcare and on the Board at Framework, the housing and homelessness charity.

Showing no signs of slowing down after a long and illustrious career, Paddy recently took over as our Partnership Convenor, a role that oversees the development of the Place-Based Partnership (PBP). His first reflections of how the partnership is developing have been positive, commenting: “There are some great really enthusiastic people working across the partnership and I’ve been really impressed by the commitment of the district and borough councils. They see this as a big opportunity and we need to listen to their agenda and be clear this isn’t just a health agenda but a common agenda we need to forge.”

On what attracted him to the role, Paddy said: “It fits in with everything I have done in my working life. I was a county councillor for a long time, a local MP for a long time, a government minister and then the Police and Crime Commissioner, so I’m used to partnership working. I used to work in the Cabinet Office, which co-ordinated teams across Government, and I think my strengths lie in building partnerships, sharing priorities and agreeing timetables so we can make a real difference. I have a wide range of skills but still have plenty to learn.

Paddy also has firm roots in the voluntary sector. As well as his work with Framework, he is also committed to the environment and has been involved in the development of the new health centres, such as Mary Potter.

A lot of his work has been connected to South Nottinghamshire, and he says: “I’ve been around a long time and know the area well. I’ve worked in Gedling before, in Rushcliffe, in Broxtowe and of course, when I was an MP, I had an office in Hucknall. It’s a familiar patch for me but clearly its challenging with four district and borough councils involved. I’ve been involved with Nottinghamshire County Council most of my working life and I’ll be encouraging them to be fully engaged with place.”

While acknowledging that these are tough times for many public sector organisations, Paddy believes that this might also be a real opportunity to think differently about how we approach and deliver services.

He says: “It’s easy to change when you have a growth budget, but nobody has a growth budget at the moment. So, if you want to do new things, and there are new things that we want to do, you have to make some judgments about priorities and think about what you might give up.

“More particularly, we could pool budgets to make a difference. For example, I’ve been working with a family where there are six different care workers, all wearing different hats, going in to help. Surely, we can do something about things like that, and integrated working gives us an opportunity to focus on that and how we can do things differently.

“There’s a tendency to drive change from the top down, but one of the really interesting things about the PBP is the opportunity to build from the bottom up. There may well be tension between what people say they want to do and what the commissioners want to do, but handling and managing those tensions is sensitive but not impossible.”

One of the aspects Paddy is particularly enjoying is getting out and about across the area. He’s been out and about across all our Integrated Neighbourhood Working towns – Arnold, Eastwood, Cotgrave and Hucknall – and says: “It’s great getting out there, talking to people on the ground and getting their views on what needs to be done.

“Building relationships online is difficult when you’re building from the bottom up, so actually getting out there and meeting people makes a real difference. Everywhere is making progress and they are all different areas and we need to celebrate that.

“It’s about learning from each other and there’s definitely the opportunity to do that. There’s the opportunity to look at what we do in South Notts and compare it to what’s happening in the City, which will be different, and it’s different in Mid Notts and Bassetlaw too. We need to talk to each other.”

And what are his ambitions for the next 12 months? He says: “I lecture at the university where I say in times of austerity there are two things you can do. You can either retreat into your bunker and do the statutory work, or you can say this is tough, we are all in a difficult position, we all want to do similar things, so let’s talk about how we can work together. How we can build strong partnerships, how can we notionally pool budgets, and what are the things we really want to do?

“When I used to work in the Cabinet Office we had a rule of three, which were the three things we really want to do. I’m slightly anxious that integrated work systems are trying to do too much and we need to focus on things that are achievable.

“So, in terms of my three, I would first look at how we can start to move some resources into primary and community care, starting with developing examples of good practice of where this is working.

“Secondly, we need to focus on prevention and working with our communities. This might mean challenging commissioners to think differently about their sense of direction and what they’re doing. I believe they are committed and are putting funding into preventative work, which is key as we transform communities.

“And finally, having a long-term interest in domiciliary care from my council days, we really need to get a handle on social care, the Cinderella service. Again, I think we can start small, look at examples of good practice and build on this.”

When he’s not working, Paddy likes to spend time with his five grandchildren, as well as being a keen walker. He’s president of the Ramblers Association and as a result (and we’re back to work again!), he’s particularly passionate about green social prescribing and has been impressed with Nottinghamshire Healthcare’s commitment to this.

It’s clear that Paddy has lots of ideas and is driven to supporting the partnership as we build from our communities up. We look forward to his leadership as we continue our journey.

‘Inspiring’ event on the health and wellbeing of people with a learning disability

Nearly 50 people attended an event focused on the health and wellbeing of people with a learning disability, which was described as ‘inspiring’, ‘’positive’ and ‘informative’.

The sharing event, held in Trowell, was hosted by Clare Watson, Health Inequalities Lead at Nottingham West Primary Care Network (PCN) and Chloe Corden, Active Lifestyles Manager at Liberty Leisure Limited (LLeisure). The aim was to share the learning from a year of prolonged listening at a series of health and wellbeing roadshows, to share actions already taken based on what they heard and to agree on ways to build on this work collectively.

The roadshows were funded by a grant of £2,000 from Health Innovation East Midlands to Nottingham West PCN to engage with people living locally who have learning disabilities – to see how local services could better support them to live more healthily.

The PCN, in partnership with LLeisure, has reached hundreds of people by holding six roadshows with patients with learning disabilities, their parents and carers alongside local partners from the health, care, leisure, and voluntary sector.

Sharing the learning

Clare and Chloe opened the event by explaining that there are unfair and avoidable differences in health outcomes and life chances for people with a learning disability and that their access to services, experience and opportunities can all be improved.

Clare said: “We think big but we’re starting small. Each of us can make a difference. Through the roadshows, we wanted to improve outcomes and experience locally but we knew that we weren’t the right people to come up with solutions or even identify the problems. We needed to hear the voice of patients from the start.”

The roadshows were a great partnership success story. There were six events with 35 partners engaged. The roadshows were designed to be a fun, safe space to share voices and opinions.

General feedback was that people with learning disabilities want to be known, they want to be spoken to directly and involved in decision making that directly affects them, and that language is important – for example, one attendee said that people were ‘talking upside down language’ – where a negative result in health isn’t usually a bad thing but a positive result may be.

Chloe added that attendees said they want access to everyday activities, and that feeling safe is necessary for a positive experience. “The aim is to have adjustments put in place without needing to be asked and remembering that when we get the small things right, we really do make a difference.”

The roadshows also encouraged people to try out social and physical activities such as Nordic walking, tandem riding and Boccia – and sessions are being established locally to encourage people to get involved and benefit their physical and mental health.

Looking to the future

The attendees did some group work on the topics of health, education and training and physical activity, discussing the issues, barriers, solutions and who was best placed to lead on implementing specific changes. The feedback included:

Health

  • Carers often worry about what will happen with their children when they are no longer here. Ideas included community and living networks where people can live independently surrounded by people who know what their needs are.
  • Continue work on having a learning disability champion in every surgery.
    • Offer additional services such as a sensory clinic for giving vaccinations or diabetes checks in places where people feel comfortable, for example at a day service, and have a named person for patients with a learning disability in the GP surgery.

Education and training  

  • Ensuring tier two Oliver McGowan training is fit for purpose and rolled out as widely as possible – not just in areas mandated, for example within Leisure, to reception staff and ‘gate keepers’ of community services.
  • Have better access to adult learning
  • CPR training
  • Training in active listening
  • Support employment by offering an experience of what it would be like to have a job and telling potential employers of costs covered by the Department of Work and Pensions.

Physical activity

  • Enablement is key
  • Leisure services are open to volunteering activities
  • Consider offering people who enjoy physical activity the chance to be a buddy for someone with a learning disability
  • Boccia can be played anywhere and training courses are available
  • How can we encourage and embed physical activity in services, through the whole system.
  • Mapping what is available, advocacy from GP practices by inviting patients to groups and opportunities.

PCN Clinical Director Ali Rounce thanked Clare and Chloe, saying “the energy, drive and passion you have are so evident, you give us hope and inspire us to make a difference. Thank you to everyone who came today for what they brought, building a greater understanding.”

Clare and Chloe also thanked the attendees and the partners in the roadshows from across Nottinghamshire, recognising that they would not have been a success without everyone’s support.